They also usually have something they call a Patient Symposium the day before or day after Saving Grace where all of the top experts on pre-eclampsia and HELLP in the country have a talk about what they know, etc. and take questions. They filmed it and sold dvd's of it a couple years ago, I have the dvd but haven't managed to watch it all the way through ever. (Too sciency even for me.)
Anyway, a few months ago I posted about the "Field of Cradles" project that Susannah Pabot put together in honor of babies lost to pre-eclampsia, and we were lucky enough to have Olivia remembered and honored with a cradle and blanket and poem, which were exhibited several places on the East Coast. Well, Susannah also brought a few of the cradles and all of the blankets to Saving Grace, and was kind enough to send us pictures.
|(I *think* that purple blanket right there is the one made in honor of Olivia but can't be for sure.)|
Obviously nothing makes up for her not being here right now, but it is such a good feeling to know that other people are learning about her too short life and remembering and honoring her too.
Anyway, the Pre-Eclampsia Foundation put together this video honoring the babies and moms who have died due to pre-eclampsia, and showed it at Saving Grace this year. They took excerpts from some of the poems that Susannah wrote and put with the cradles and blankets for each baby, for parts of the video. It's a very nicely done video but you'll definitely want to be prepared to cry.